STILL HERE

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They don’t see what it takes to keep living

The hospital admissions.
The pain crises.
The blood transfusions.
The sleepless nights.
The fear of the next crisis.
The financial pressure.
The cancelled plans.
The emotional exhaustion.
The moments when you quietly wonder: “How long can I keep doing this?”

If you have ever felt like people see the person you are on the outside but have no idea about the battle happening inside, you are not alone.

This is for the person who has thought

“Nobody really understands what this feels like”

For the person who has had to explain why they need to rest.
For the person called lazy when they were actually exhausted.
For the person who has smiled through pain.
For the person who has spent nights in a hospital wondering when it would end.
For the person watching medical bills pile up.
For the person worried about relationships, marriage and genotype.
For the person wondering whether sickle cell has made their future smaller.

Your life is still yours.

Introducing

STILL HERE

My Journey Through Sickle Cell, Loss, Faith, and Hope.

A true story by Comfort Isaiah

A deeply personal 75-page book and practical guide, created from the lived experience of someone who walked through sickle cell disease, hospital admissions, blood transfusions, grief, fear and some of the darkest seasons of her life.

But this isn’t only a story about what happened to her. It is about what her experience can teach you about navigating yours.

The book deliberately moves from her story to yours, turning painful experiences into lessons, reflection, practical preparation and hope.

Because sickle cell is more than pain

It touches everything

HealthMental wellbeingRelationshipsCareer FinancesFamilyConfidenceDreamsPlans for the future

Sometimes the hardest part is not knowing how to navigate all of it at once. That is why STILL HERE goes beyond telling a sickle cell story. It gives you a space to feel understood, and practical things to prepare for and act on.

Inside the book

What you’ll find

📖

A real story of living with sickle cell

From discovering her HbSS status at seventeen, through serious crises, repeated admissions, transfusions and the emotional realities that came with them. This isn’t written from theory. It is lived experience.

🩸

Blood & emergency preparation

Building a blood donor network, keeping your blood information accessible, preparing emergency contacts, and deciding in advance where you go when you need urgent care.

An emergency is the worst possible time to start figuring everything out.

🚨

Warning signs you should never ignore

The symptoms and complications every warrior should know, with clear encouragement to seek medical care when they appear. The goal isn’t to make you afraid. It is to make you informed.

💧

Your everyday plan

Identifying your personal triggers, hydration, staying warm, rest, infection awareness and building routines around your own reality. Preparation happens long before the hospital.

🧠

The emotional side of sickle cell

The anxiety. The exhaustion. The fear. The grief. The feeling of being a burden. The mental weight of wondering what tomorrow brings. Struggling emotionally does not make you weak.

❤️

Love, genotype & relationships

When to tell a romantic partner about your condition
How to approach the genotype conversation
Why verifying genotype matters
How to have difficult conversations early
What healthy support actually looks like
Why having sickle cell does not make you unlovable

💰

Money, work & building a life

Admissions, transfusions, medication, tests, transport, time away from work. Sickle cell is expensive, and nobody talks about it enough.

Building a crisis fund before the crisis
Health coverage, and what yours actually includes
Work arrangements that survive a bad week
Business and flexible income you can control

The part people rarely talk about

The life beyond the diagnosis

You can still have dreams. Build a career. Start a business. Fall in love. Learn. Create. Travel when it is right for you and your care. Laugh. Make plans. Become everything you are capable of becoming.

Sickle cell may change how you navigate life. It does not have to become the only thing you think about.

Practical resources included

Not just 75 pages of someone’s story

Genotype reference
Hospital bag checklist
Emergency card
Blood donor network
Trigger & crisis log
Sickle cell essentials
Practical questions to discuss with your healthcare team
A final action section, to turn what you read into something you actually do

One action is worth more than an entire book you agreed with and then closed.

This is for you if

You recognise yourself here

You live with sickle cell disease.
You are newly diagnosed and don’t know where to begin.
You have lived with it for years but still struggle with parts of it.
You want to be prepared for emergencies instead of caught by them.
You want to understand the emotional side of your experience.
You are thinking about love, marriage and genotype compatibility.
You are building a career or business while managing your health.
Or you simply need something written by someone who understands.

Nigeria, Ghana, Kenya, South Africa, anywhere in Africa, or the diaspora. This was written for people living this reality.

And one more thing

You don’t have to pretend it’s easy

You don’t have to call every difficult day a blessing. You don’t have to pretend you are not scared. You don’t have to be strong every second. You don’t have to explain your pain to people who refuse to understand it.

You are allowed to say this is hard. And you are allowed to believe your life can still be beautiful.

Get your copy

Your diagnosis does not cancel your future

Instant download

STILL HERE

75 pages of lived experience, practical guidance and hope.

₦9,999 / $10

One payment. Read at your own pace, keep it on your phone, return to the practical sections whenever you need them.

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What is included

The full 75-page book, story and practical guide
Genotype reference and hospital bag checklist
Emergency card and blood donor network pages
Trigger & crisis log
Questions for your healthcare team
The final action section

The download reaches you the moment you pay.

Questions

Before you buy

How do I receive it?

It is a digital PDF. The download reaches you immediately after payment, and you can read it on your phone, tablet or computer.

Can I pay in dollars?

Yes. The price is ₦9,999 or about $10, and checkout will handle your card.

I don’t have sickle cell. Is it still for me?

Yes, if you love someone who does. Parents, partners, siblings and friends read it to understand what the person they care about is carrying.

Can I print the resources?

Yes. The checklist, emergency card, donor network and crisis log are made to be printed and filled in by hand.

Is this medical advice?

No. It is one person’s lived experience, written to encourage, educate and give practical perspective. Always speak with your doctor or haematologist about your own care.

Is there a refund?

No. It is an instant digital download and cannot be returned. Please read this page carefully and be sure before you pay.

Before you go

Your story is not over

Maybe you have lived with this for years. Maybe you were diagnosed recently. Maybe you have lost someone to it. Maybe you are tired. Maybe you are afraid.

You have already survived every difficult day that brought you here.

There are still chapters you haven’t lived. Still dreams you haven’t pursued. Still people you haven’t met. Still memories you haven’t made.

You are still here. And sometimes that is where the next chapter begins.

Instant PDF. Read on any device.